We advocate to ensure that each client is not only having their needs met — but that their voice is being heard.
Epilepsy can create several challenges and can sometimes leave clients feeling hopeless or that they have nowhere to turn. We're here to change that.
We help clients navigate the process of applying for disability benefits or appealing a decision. Our staff can assist with paperwork and represent your interests throughout the process.
We can represent a client in an educational planning meeting — including IEP meetings and 504 plan discussions — to ensure students with epilepsy receive the accommodations they need.
We work to increase awareness of epilepsy and epilepsy-related issues with legislators and representatives at the local, state, and national level so that policy reflects the real needs of our community.
We assist clients who are facing challenges in the workplace or at school related to their epilepsy diagnosis — including discrimination, accommodation requests, and employment rights.
Teens Speak Up! (TSU) is one of the Epilepsy Foundation of America's signature advocacy initiatives. Selected teens travel to Washington, D.C. for advocacy training and meet with members of Congress to share their stories and represent the epilepsy community.
The 2027 TSU event takes place April 11–13, 2027 in Washington, D.C. Travel, lodging, and most meal expenses are covered for each selected teen and one family member.
National eligibility requirements:
Sibling spots available:
If a teen with epilepsy is unable to travel due to health or disability concerns, a limited number of spots are available for eligible siblings — including siblings who have lost a brother or sister to epilepsy.
EFSETN Local Requirements:
Epilepsy can create several challenges and can sometimes leave clients feeling hopeless or that they have nowhere to turn. If you are in need of an advocate or case management, please contact one of our staff — we are here to help.